Neuromuscular · Rare · teaser

Spinal muscular atrophy

Updated August 2026 · SMN1 (5q)

Teaser case. Selected price and peak-sales fields are held for a paid Brief — the rest is the method.

Algorithm

Newborn / Type 1

NBS → urgent GT if eligible and seronegative; oral if not.

Chronic SMN restoration

Evrysdi default for convenience; Spinraza where IT preferred or GT already given.

Older / previously untreated

Itvisma or chronic SMN. Case-by-case.

One-time, early / Type 1

Zolgensma

onasemnogene abeparvovec · Novartis

List / typical annual

$2.1M

One-time ~$2.1M

Eligible
Bi-allelic SMN1, age/weight per label
Route
One-time IV
Endpoint that matters
Survival / permanent ventilation; CHOP-INTEND
Curative?
Potentially transformative
Efficacy
Transforms Type 1 natural history when given early. Event-free survival and motor milestones vs historical.
Safety
Acute liver injury, troponin, thrombocytopenia. AAV9 serostatus. Age/weight label limits.
Residual unmet need
Cannot redose. Older / heavier patients historically out of label — Itvisma is the answer.